Up to 85% of HCM cases remain undiagnosed in the general population—despite the disease affecting approximately 1 in 500 people, making it one of the most common genetic heart disorders.
Black patients with HCM are more likely to present with heart failure but are less likely to receive life-saving interventions highlighting critical racial disparities in care.
HCM can often be diagnosed non-invasively yet many at-risk patients go untested due to barriers like insurance status, transportation, or provider awareness.